Eating, walking, and talking are some of the activities that every human being does without someone else’s help. Being unable to do these basic activities makes them dependent on another person for nominal things. Recently, a similar case has come across in England, where a teen has been found suffering from a rare disease. This makes her unable to walk, talk, or even eat by herself.
According to a recent report in The Mirror, an 18-year-old girl named Millie McAinsh has been suffering from a rare disease called Myalgic Encephalomyelitis, commonly called ME. The disease is also known as chronic fatigue syndrome which is a multi-system disease that affects an individual’s physical ability and quality of life. There are no specific tests available today to diagnose the condition. The possible diagnosis is done based on the symptoms. The condition is fatal, as there is no cure for ME so far.
In Millie’s case, the condition is so acute that she has been unable to walk or sit up and also struggles to speak and swallow too. A mere sensation of touch, noise, and light becomes unbearable for her as her sensory hypersensitivity is vulnerable due to ME.
Earlier in January, Millie was privately diagnosed with a severe condition of ME and was hospitalised, where she was fitted with feeding tubes for her survival. This was done after her condition deteriorated severely when she stopped being able to swallow food or even drinks.
According to her family, Millie begged the doctors to help her out by eating as she was hungry. She mentioned, “I feel like I’m dying. I’m constantly hurting. I’m in agony and they are not listening to me,” The Mirror quoted her saying.
Millie began to suffer the symptoms in 2019, and her health started to worsen every year following that. Her physical ability was severely affected in December 2023. Later on January 30, this year, Millie was admitted to Lancaster Royal Infirmary.
Dr William Weir, the private physicist who diagnosed Millie with the condition mentioned that she is experiencing it on a severe scale. Presently, her condition is at such a level where an excessively reduced volume of blood returns to the heart after getting up every time she gets up from a lying down position.
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